(Warning: this is rather a long post. *the River Syndrome: my name for the kind of craziness exemplified by the character River Tam in 'Firefly' and 'Serenity'.)
I’ve had a lot whirling around my head recently. Trying to make sense of it is like… well, it’s like something really difficult. I can’t find a tidy simile at the moment.
It all started almost two weeks ago… actually, this isn’t where it started, but I’m only able to go back that far right now. I got gluten. I’m not sure which exact circumstances (out of two possibilities) provided the poison, but there it was. I crashed late Friday morning, and Saturday, Sunday, and Monday were miserable. By Tuesday, the worst was over, and the rest of last week saw slow improvement. But that crash, and those days, triggered a LOT of introspection and frustration, on several different levels.
Firstly, it wrecked me physically. I’ve been exercising regularly since the beginning of June, and it’s been making a HUGE difference. I’ve been getting stronger, more energetic, more flexible… but after just four days, I felt like I’d lost at least two weeks of work. While my body’s glutenized, I’m fatigued. My muscles are just plain weak and tired and achey. I have trouble sleeping, so I’m exhausted too. But once the gluten wore off, my muscles still felt weak. They’re still not back to where they were before, and it is such a fight to push myself through exercises that were easier before. It also didn’t help that during those days I wasn’t able to think clearly, and my eating suffered. All that added up? I lost muscle. At least, it felt like I did. And that is incredibly frustrating, when my body has finally been gaining strength and mobility.
Secondly, mentally it’s a struggle to re-calibrate. Gluten always affects me mentally – if that’s all it did, I would avoid it. It wrecks my ability to concentrate, to follow any train of thought (or even any complete thought), and it deadens my memory. Short-term memory – gone. The result is that I live in a mental fog. I can’t think, I can’t remember, and coming out of it, I still can’t remember.
The interesting thing about this bout is that I was somewhat prepared. Funny. I had just been re-reading old blog postings, and my attention was caught by the difference in tone before and after I stopped eating gluten. Especially that last year before I stopped, I was increasingly unstable, manic, confused. So I was thinking about what it tends to do, and how it shifts my emotional-mental state into such extremes. When it hit, I was able to think: I don’t want that. I don’t want to be crazy. I don’t want to feel destructive or depressed. I don’t want to be lost in those extremes. So I put all of the little energy and ability I had into trying to keep myself mentally stable. That meant forcing myself to be thankful – to verbalize blessings – when I felt my thoughts turning down. It meant running song lyrics, or short phrases of Scripture, or something else I could focus on through my mind whenever I started going crazy. It meant shutting all the whirlwind of thoughts down, pinpointing one little thing to get stuck on so that I didn’t super-ball bounce in my head. And this was hard. I forced myself, on occasion, to join my flatmates in the living room, even though I had nothing to contribute, simply because trying to follow the conversation pulled me out of myself enough to keep me from curling up into a corner and rocking back and forth. I refused to let myself make decisions based on my emotional-mental state, about me, about others, about potentials. And I was less crazy than I’ve ever been with gluten.
But I was still exhausted. I’m still reeling from the effort of it all. I had a FULL week of work last week, so I had no time off, no significant time to rest, or get away, or anything. And I was still living in mud and fog. I tell people that I lost several days of my life, and I still feel that way. Nothing happened. I was elsewhere, I didn’t exist, nothing made sense, nothing made anything. I lost almost 5 days of my life, and coming back after that is not easy. Trying to get out of the mud and fog is not easy. The sun slow burns through the haze. I tell myself not be blame myself, not to be frustrated with myself – that will only make it worse. I tell myself to think about food – make sure I’m eating enough, and eating well and very very carefully. I tell myself to let go, to forgive myself, to not cling to what it was like. I tell myself that yes, it is good to process this – it’s been awhile, so yes, think about what happened, and how you dealt with it well, and how you dealt with it poorly – but it is not good to accuse. I remind myself: you didn’t sit in a corner, knees to chin, rocking back and forth; you didn’t go around punching walls; you didn’t talk nonsense for three hours straight; you didn’t cry yourself to sleep; you didn’t skip work; you didn’t… This was SO MUCH better than before! Maybe I’m learning how to live around the madness. In spite of it. Maybe next time I’ll be even better able to deal. Maybe I’ll tell my flatmates sooner, have some kind of support in place with people helping me remember to eat, helping me relax, keeping me more stable. But enough of the maybes.
The other tricky thing about dropping again into the craziness is that my mind still remembers what it was like. In some ways, it’s like a drug, and when it’s recalled to strongly, there’s a temptation to give in to it, to twist my mind into that shape again, to act manic just because. There’s a fine line for me between simply thinking about the craziness, and thinking like the craziness. Because I can. The neural pathways are still there – are reawakened by my recent bout. But I won’t. I don’t want to. I hate it. I’d rather be sane, even though insanity is fascinating. I’d rather not have mud sucking at my feet. I’d rather not feel like someone with a creepy cackle is using my heart as a juggling ball. I’d rather not my mind bounce crazily, uncontrollably. I’d just rather not.
And there are so many random pieces that I may have noticed before but don’t understand: why do some people’s mere presence stabilize and calm me? Why does loud heavy music reduce my emotional extremes? Why does it tend to make me cry, and afterwards feel better? Why is it so hard to read? Why do I find myself walking and walking, far past hunger and tiredness, until I’m ready to drop from exhaustion? Why do I feel like if I’m alone, I have to keep moving, almost running, keeping one step away from… something? Why do people make such a difference? Why does rain make it better? Why is it so hard for me to prepare food – why do I just want to grab and eat, sweet and salty things, mostly? Why do I prefer liquids? Why chocolate? Why does touch make such a difference?
I don’t know yet.
And I’m still fatigued. I’m tired of being exhausted. My strength is returning, though. My body is demanding even more food than normal, trying to regain what it lost, I suppose. The fog is lifting. I’m relaxing more. I’m family-sick, though. Having my brother around would help me. (Hah. One reason I can’t go through my entire life alone: people are necessary for full recovery from glutenization. More specifically, guys are necessary, but only certain ones help. There are those few, of which my brother is one, whose very presence is a stabilizer for me. And I need them when I’m coming off gluten! Another unexplained oddity. Hrrmph.)
Things will get better. They already are, and they will continue to. I need to be extra careful. I need to keep practicing and choosing trust. Keep breathing, Suzanne. You have much to be thankful for, and much to look forward to. You are still discovering how all those seemingly disparate passions and desires and skills actually fit together. Be patient with yourself. Be patient with the picture – it will not always be incomplete, and it is already so much more complete than it ever has been. Rejoice in what has been. Rejoice in what is. Rejoice in what will be. For that is trust – that is hope – to rejoice before.
Good-bye again, crazy self. Over destruction and senselessness, I choose life.